Patients now generate a significant amount of online material about health. This raises questions about how we should design websites featuring patient knowledge and experience in order to ensure those sites provide a good match to patient needs. In this presentation I describe a structured participatory methodology for the development and evaluation of a set of patient experience websites that took place over three phases, consistent with experience based co-design: (1) a capture phase in which we worked with patients to understand their reactions to existing websites; (2) an understand phase in which we translated this information into a patient-engagement framework and accompanying set of design guidelines and (3) an improve phase, where we used these guidelines to create three new health websites that were then assessed as patient experience interventions in a range of empirical studies.
Pam holds a Chair in Applied Psychology, delivering innovative research and consultancy around issues of identity, trust and security in new social media. Her research seeks answers to three main questions: Why and when do we feel secure in disclosing sensitive identity information about ourselves? What makes us trust an electronic message? How and when do we seek to protect our privacy?
In the last five years, Pam has published over forty articles on human perceptions of trust, privacy and security in computer-mediated communication and has recently developed, with colleagues, an innovative model of health advice-seeking online (ESRC funded). She has given a number of invited addresses on online trust and e-health, including an invited address on e-health to the World Health Summit 2009, the opening address at the Second International Conference on Privacy, Security and Trust (Canada) and the keynote to the 2010 IFIP Trust Management conference in Morioka, Japan. She has been a member of ESRC’s fellowship and CASE studentship committees and has recently made a contribution to the Govt. Office for Science’s Technology Foresight programme on the Future of Identity. She is currently a member of EPSRC’s new Identity Futures Network and also EPSRC’s Cybersecurity Network. She is one of the founder members of the UK’s new ‘Science of Cybersecurity’ Institute, funded by GCHQ in association with RCUK’s Global Uncertainty Programme.
This seminar is part of our ongoing series from researchers in HCI. See here for our current schedule.